May is EDS Awareness Month. To help raise awareness about Ehlers Danlos Syndromes & Hypermobility Syndromes, The EDS Society (US) has come up with a social media campaign called #MyEDSChallenge. Every day has a theme that EDS patients can use to talk about their condition(s) on different social media channels. I will be joining this challenge as much as possible on Twitter, Facebook, Instagram and YouTube.
Day 1 has the theme “This is Me”. I created the above image to say something about me & EDS, as well as a short video on YouTube.
Today, my little man and I (with the big man) walked over 1000 steps and hit our goal for Day 1 of the EDS/HSD Fundraiser that we are doing for HMSA Charity. You can donate and support the charity (and our efforts) here – https://donate.giveasyoulive.com/fundraising/supporting-hyper-mobility-syndromes-association
Thank you for starting this journey with us!
I am a burned out international lawyer & mother with Fibromyalgia and anxiety, trying to re-discover my identity.
