Welcome to the homepage for the #ParentingwithPain Twitter chat. This monthly chat will take place on the Third Saturday of each month 6-7pm CET (convert timezone).
The goal is to bring together a community of parents with chronic illnesses or chronic pain for discussion, support and solidarity. This chat is open to any parent, guardian or regular caregiver (for children) who lives with chronic illnesses or chronic pain.
The chat was inspired by my discussions with parents in the #NEISVoid community and #MigraineChat conducted by Beth Morton.
If you have topic ideas or want to co-host a chat, please feel free to contact me on Twitter or through the blog.
Join us for #ParentingwithPain twitter chat every month on Twitter. Follow @renudhinakaran
OTHER WAYS TO JOIN #ParentingwithPain Chat
Not on Twitter? Parenting with Pain is on Discord. Discord is a more private chatroom that is organized by topic. General discussion, support and advice can be exchanged between parents with chronic illnesses in this space. Download the app or access it on your desktop/laptop and join our community here.
Chat Topic and Questions
Questions will be posted a few days earlier, usually around d the Friday before each chat, so that you will have time to prepare your tweets in advance if you wish.
Ground Rules & General Guidelines
- Introduce yourself. At the start of each chat, share where you are joining from (if comfortable) and may be some fun fact about yourself.
- Include the #ParentingwithPain hashtag in every tweet. This makes the tweets easy to follow. You can do this in a few ways: –Open a Twitter browser, then enter #ParentingwithPain in the search window. Once the results come up, click “latest” to see chat tweets in reverse chronological order. Keep refreshing your browser. –Alternatively, consider using a site like Tweetdeck, Hootsuite, or TweetChat.
- To keep things clear, use a Q1/A1 format for your tweets. For example, when we tweet our question Q1, you’ll start your responding tweet with “A1: ….” If your response requires multiple replies, you can use something like A1.a, A1.b, A1.c, etc., numbering or thread your responses. You can also quote tweet our question with your response. Don’t forget the #ParentingwithPain hashtag (even if quote tweeting).
- You don’t have to answer every question. Contribute wherever you are comfortable.
- We value interaction. Read, reply, like, engage with, and retweet others’ responses. We want this to be a chance to share and learn.
- Retweet Responses that resonate with you to share with your own followers.
- If you know of relevant resources or articles, add references.
- Take time to reply to others’ responses.
- Please remember to –Be respectful of others’ parenting techniques, methods and the socio-cultural backgrounds influencing them. We each have our own parenting style. This is a judgment free zone. –Be gentle with unsolicited advice. –Not share private information, especially about minor children. Twitter is a public forum. –Refrain from using the chats to sell your personal products and/or services. However, topics may cover products and services that make parenting with pain easier. Sharing is encouraged.
- Use these chats as an opportunity to find and follow new people.
- You may want to tweet out to your followers a high tweet volume warning before commencing the #ParentingwithPain chat. That allows them to join us if they are interested or mute our hashtag if they don’t want to.
I am a burned out international lawyer & mother with Fibromyalgia and anxiety, trying to re-discover my identity.
